Beyond Awareness: The Fight Against Rare Diseases
WBUR - 02/26/2013
Did you know that February 28 is Rare Disease Day? Probably not, despite the fact that more than 700,000 classified rare disorders affect nearly 30 million Americans. Whether it’s finding specialists who can diagnose us, advocating for our needs, or getting effective medications when blockbuster drugs get much of the funding, rare disease patients live beyond the fray in many senses.